Patients as Partners

Nothing about me, without meThe Patients as Partners Initiative was founded on the principle of, “nothing about me, without me.” This continues to be our aim: to ensure the patient, family and caregiver voice is incorporated at all levels of the health-care system.

The work of Patients as Partners is focused on three main areas:


Person- and Family-Centred Health Care
We collaborate with a range of stakeholders and work to provide leadership, tools and resources that help integrate patients’ and families’ voices, choices and representation in health-care system decision making. 


Chronic Disease Self-Management
We fund and help coordinate a range of free, publicly available self-management programs, training and education sessions, peer supports, and resources for patients, families and caregivers. 

For a full list of upcoming events, visit our Activity Calendar for Patients, Families and Caregivers​.


Engagement
We help build engagement capacity by providing training to health sector staff, leading engagement sessions to support Ministry priorities, and providing free engagement tools and resources on our website.

Engagement Tools and Resources

Patient, Family, Caregiver and Public Engagement Framework 2018 (PDF, 1.4MB)
This document helps guide patient, family, caregiver, and public engagement in British Columbia. The Framework defines the three categories of engagement (Individual Care, Community Engagement and System Redesign) and provides information about the spectrum of engagement, why engagement should be carried out, principles of engagement, and best practices for engagement.

 

Engagement Planning Guide (PDF, 2.3MB)
The Planning Guide provides a step-by-step approach to the planning, design, management, reporting and evaluation of community or system level engagement activities. Each stage and associated steps is outlined in the document with supporting examples with blank templates provided in the appendices.

Engagement Planning Summary (PDF, 876KB)
This Summary acts as a quick reference for the steps involved in engagement planning. 

 

 

Example Engagement Forms: Confidentiality, Conflict of Interest and Consent and Release

The Patients as Partners Initiative has developed three forms that are used when leading a patient and public engagement session. The need for each form will vary depending on the requirements of each engagement. These forms are examples only and are not intended for external use. 

The Consent and Release (Adult) (PDF, 62KB) and Consent and Release (Minor) (PDF, 63KB) are used to obtain participant consent to collect data, photographs, video and information during events that can be used for reporting after the engagement.

The Confidentiality Acknowledgment (PDF, 58KB) (is an agreement between two parties for information to be kept confidential.

The Conflict of Interest Statement (PDF, 101KB) is used to identify where participants may have a conflict of interest that could inappropriately influence (bias) their actions.

 

 

Annual Engagement Events

 

Through the Patients as Partners Initiative, the Ministry of Health funds, organizes and hosts an annual forum (known in the past as the Provincial Annual Dialogue or Regional Tables) for 100 -150 patients, families, caregivers, health-care providers, health authority staff, community partners and non-profit organizations from across the province. In the past, participants have learned about the progress of Ministry of Health strategic priorities and have provided input on how they believe heath care organizations should be engaging patients and their families for health care improvement.

This one-day event brought together patients, families, caregivers, health-care providers, Ministry of Health representatives, health authority staff, community organizations, and health sector partners to provide opportunities for meaningful engagement; ensure purposeful engagement on topics that matter to participants;  and provide information to participants based on input from last year’s session. 

2019 Community Conversations Summary Report (PDF, 3.1MB)
Topics discussed at the Community Conversations event included:  Digital Health Technology; the Need to Fine Tune Community Engagement; Person and Family-Centred Health Care; and Lessons Learned on Team-Based Care with the Chinese Community.

In 2017-2018, the Patients as Partners Initiative changed the format for the Annual Dialogue from one large engagement session to multiple regionally based engagement events across the province. This change in format enabled the Ministry of Health to engage a greater number, and diversity, of patients, families, caregivers, health authority staff and clinicians throughout the province on the following topics: access to primary care; challenges and opportunities for rural and remote communities; urgent primary care centres and shared care plans; access to health for urban indigenous people; and person- and family-centred care.

On February 28, 2017, the Ministry of Health hosted the Patients as Partners’ provincial Annual Dialogue event, which brought together patients, health-care providers and staff to share their lived experience. It generated new ideas on how to improve patient- and family-centred care in the province. Input has been shared with policy makers in the ministry and health authorities.