Your Voice

Your Voice allows patients, caregivers, and patient groups to take part in B.C.’s drug review process.

If you are a B.C. resident, you can give input if you

  • have the medical condition that the drug would be used for; or
  • are a caregiver for someone with that medical condition; or
  • are a representative of a patient group for patients in B.C. with that medical condition, and the patient group is registered with PharmaCare. 

See below for eligibility requirements for caregivers and patient groups.

Your Privacy

Your survey answers are stored in a secure government location. The Drug Benefit Council reviews your answers, but your personal information and any other identifiers are removed by authorized employees beforehand. 

Your personal information is used in accordance with the Freedom of Information and Protection of Privacy Act. Your name, address and postal code are collected only to

  • verify you are a resident of B.C.; and
  • allow us to respond if necessary.

Giving Input

Drugs currently under review are listed below. If you are eligible to give input (see eligibility requirements below), fill out the online questionnaire. Your answers to the questionnaire will be considered by the Ministry as part of their review. You will be required to declare any conflict of interest.

You may submit a questionnaire only once. If you navigate away from the survey while entering your responses, return to the survey and you will automatically be taken to your last completed response. To ensure privacy, you cannot change your answers once you’ve clicked to the next survey question.

Current Surveys

Drug name

What the drug is for

When you can give input

Take the survey

tafamidis (Vyndaqel)

Drug Information Sheet (PDF)

transthyretin amyloid cardiomyopathy October 23, 2019 until midnight, November 20, 2019 Patient Survey
Caregiver Survey
Patient Group Survey

belimumab (Benlysta)

Drug Information Sheet (PDF)

systemic lupus erythematosus October 23, 2019 until midnight, November 20, 2019 Patient Survey
Caregiver Survey
Patient Group Survey

glycopyrrolate (Cuvposa)

Drug Information Sheet (PDF)

chronic severe drooling in children with neurological conditions October 23, 2019 until midnight, November 20, 2019 Patient Survey
Caregiver Survey
Patient Group Survey

iron isomaltoside (Monoferric)

Drug Information Sheet (PDF)

iron deficiency anemia October 23, 2019 until midnight, November 20, 2019 Patient Survey
Caregiver Survey
Patient Group Survey

burosumab (Crysvita)

Drug Information Sheet (PDF)

X-linked hypophosphatemia November 13, 2019 until midnight, December 11, 2019 Patient Survey
Caregiver Survey
Patient Group Survey

icosapent ethyl (Vascepa)

Drug Information Sheet (PDF)

ischemic events in statin-treated patients November 13, 2019 until midnight, December 11, 2019 Patient Survey
Caregiver Survey
Patient Group Survey

glucagon (Baqsimi)

Drug Information Sheet (PDF)

severe hypoglycemic reactions November 13, 2019 until midnight, December 11, 2019 Patient Survey
Caregiver Survey
Patient Group Survey

If you want to see a survey before committing to filling one out, see these past questionnaires for general drugs and biosimilars:

If you have technical difficulties submitting your input, contact pim@gov.bc.ca.

Sign up for our subscription service so that we can email you when drugs are being reviewed.

An eligible caregiver is both a:

  • resident of British Columbia; and
  • a caregiver to someone diagnosed with the specific medical condition(s) or circumstance (the "indication") for which the drug under review would be used.

For drug review purposes, a caregiver is a person who provides regular ongoing care to an individual patient. The caregiver may be a:

  • family member (e.g., child, parent, niece, nephew);
  • person hired to provide care in the patient’s home (e.g., home care worker, practical nurse);
  • person hired to provide individualized, supplementary care to a person in a hospital or care facility (e.g., hospice, residential care facility)*; or
  • volunteer who provides ongoing care to a patient either at home, or in a hospital or care facility (e.g., a volunteer hospice worker).

*Nurses who care for groups of patients in a hospital are not considered caregivers. Nurses hired to provide care to individual patients, however, are considered caregivers and can complete a caregiver questionnaire.

To provide input, patient groups must:

  • represent British Columbia residents diagnosed with the specific medical condition(s) or circumstance (known as an “indication”) for which the drug would be used; and
  • be registered with the Ministry of Health.

For drug review purposes, a patient group is a not-for-profit entity whose primary purpose is to advocate for the patients it represents. Organizations may have other purposes, but patient advocacy must be an ongoing priority.

If you are not sure whether your group qualifies as a patient group, email pim@gov.bc.ca.

Patient groups must register to have input into the Drug Review Process. Registered patient groups are listed on our website (PDF).

Not yet registered? Use our registration form.